The past week has been a crazy whirlwind since Avery's tracheotomy. Initially, she was recovering well, but later developed a staph infection in her trachea and was taken off her normal feeds due to persistent vomiting. The infection is responding well to antibiotics, but the vomiting and tummy discomfort have been harder to pinpoint and treat. The doctors have theorized that it may be severe reflux, a milk protein intolerance or a stomach disorder that causes the stomach to empty slower than the average baby. Or perhaps a combo?
We do believe that she has quite severe reflux, since she has responded SO positively to the Prevacid, an antacid that would not stop the vomiting, but simply block her stomach from making so much acid. She still vomits as much as she ever did, just more comfortably.
Avery is on an elemental formula in case of a milk protein intolerance and let's just say it has made no difference. Aaaand, she'll be switching back to breastmilk soon, especially since I've been avoiding dairy for the last week if she was indeed reacting to the cow's milk proteins in my milk.
Speak of which, Avery has been nursing. YAY! Not for nutritional support, but just as practice for now. She's so incredible... The girl is over two months old and easily learning to nurse and bottle feed like she's been doing it all her life. I love that little champ.
I'm currently living in Chapel Hill most of the time, only occasionally going home to visit Cody and the kids for a day or two. I miss those little punks non-stop.
I know sometimes (okay, always) I'm a pushy, know-it-all mom who is difficult to deal with, but for the most part, the doctors and nurses at UNC Children's Hospital have been awesome. They are incredibly good natured and let me have a huge amount of input in Avery's plan of care. We talk and they let me feel like I'm part of the team, trouble shooting and diagnosing. One of these days I'm going to go to finish my degree and go to medical school so I can REALLY be a part of the team. ;-)
I know I say it a lot, but we're so grateful for your support, especially that of the "dream team" who came in to take shifts, watching and holding Avery before she got her trach, so that Cody and I could sleep...
Mike, Anna, Isaiah, Caitlin, Jon, Mom & Dad: you guys are the absolute best. Thank you.
And FYI to everyone else, I know I don't always respond to your texts, FB messages and emails, but I read EVERY word and remember and think about what you say, your encouragements, your suggestions, etc. Thank you for taking the time to pour into my life in that way.